You want to put that where?

A journey into IC and Familial Adenomatous Polyposis (FAP). 2 seperate diseases of the bladder and colon.

Archive for the tag “antibiotics”

Deadlifts and Polyps

So I am determined to go have my stem cell treatment for my bladder in the next 12 months. Lately my bladder is running the show, once again and I really don’t want to have another hydro done. Stem cells cost 5k and even though I am so poor due to not working I am going to make it happen. I am looking for part time work now and even full time since I just need to do this. I need to have this last thing happen to see if the harmony in my insides can work. The chronic pain of bladder and pouch related issues is just becoming too much. Tired of my bladder running the show! Someone hire me! I am a great Art Director/Creative Director with mad skills!!

Other than that I told myself I can lift heavy with this pouch and I need to try. On my good days I go to the gym, even if it is to row for 1k meters and lift a few times. It is usually bladder issues, just like the usual, that make it hard to work out. If you don’t have IC it is very hard to ever explain what the chronic pain is like. And there are good days and ok days and really really bad days. Even on good days I still have a pain level of 5. It never goes away. The flares are just sometimes better than other days.

Anyway, I was stuck at 140 pound deadlift for 6 months now. I am 9 months post op almost and I went back to the gym 2 months post op even though I didn’t lift over 30 bs for a month or 2 later that that. So lets just say 6 months. I lifted 175 pounds last week! It was awesome and I was commented on how good my form is ;-) Anyway my PR is 225 pounds and my goal is to lift 400 this year so even if I get to 300 pounds I will be happy. My hernia might not grow, it is so small I can’t even feel or see it only a CT scan picked it up so I just make sure I am always lifting with my legs.

Back on Antibiotics once again. Only way I can get my pouch to not be angry. For the first time in over 2 decades I don’t have ONE FUCKING POLYP IN ME! I know it won’t last but I can enjoy this feeling for now. It came with a price. The pain I went through after the last upper scope to burn the rest of the polyp/tumor was insanely bad and I can’t imagine keep going through upper scopes. The gas it produces and the pain my pouch has is bad. Everything hurt even my finger nails. My ribs felt like they were going to break if you touched them and my joints felt like they were going to pop. This disease sucks but I have to think one day this pain will end. This is my belief in science and stem cells.

Stuff and stuff

Well my pouch issues are at it’s worst lately. No clue what is up. Having another pouch scope on the 21st or around then since I am over it. I am just going down hill so no clue what is up. i don’t have the internet since i moved until Wed so this post will be short since I hate using my phone for the internet.

Had an iron infusion on Thurs at Baylor. Have another one on the 16th.

Sad thing is my Birthday is on the 3rd and I could care less. I just want to be normal or at least feel like it. Tired of the pain.

Antibiotic Therapy for Interstitial Cystitis?

Truth to this. When I am on Cipro I don’t experience flares. When I am off they come back. Since I have been on antibiotics 80% of the past 7 months I can say it helps IC flares and urgency.

Antibiotic Therapy for Interstitial Cystitis?.

probiotics

So some studies show probiotics don’t work if no colon is present. I am torn. Other people seem to have more issues taking VSL. I had some then tried Align and got off antibiotics since I am having a 7 month love affair with them but I had a wicked infection brewing, I can always tell because it smells like a sewer is coming out of me. Cipro cleared that up in a few hours so starting to think probiotics just don’t do enough to buy into them when antibiotics help. I also don’t have pouchitis so I don’t get what the fuck is up. My small intestine needs to start doing it’s damn fucking job.

some articles with different arguments

http://www.ibsgroup.org/forums/topic/92968-probiotics-without-a-colon-need-advice/
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=33796

 

 

Post Navigation

Follow

Get every new post delivered to your Inbox.

%d bloggers like this: