You want to put that where?

A journey into IC and Familial Adenomatous Polyposis (FAP). 2 seperate diseases of the bladder and colon.

Archive for the tag “no colon”

C.diff

Things I have heard or all I really knew ARE WRONG!

With my hell of a god damn year. And constant roation of Cipro, Omnicef and the latest Suprax. How would anyone with no colon and on antbiotics get C.Diff. Yes that is what I was told. Then another GI I had said if I never had C.diff with a colon then it would be highly unlikely I would have it now. ERRR WRONG! All bullshit. Those 3 antibiotics cause Cdiff to grow basically. I mentioned this to Bo Shen at Cleveland Clinic (#4 GI in the world I think he ranks) and he laughed, said he sees it a lot , people with no colons having it and sometimes just the valve itself having cdiff.  So I start oral liquid Vanco once I get a compound pharmacy to make it, CVS is figuring that out for me. And hopefully this hell I have had forEVER gets under control.

 

I never had pouchitis but yet I have been swallowing antibiotics for it. If scopes continue to say you are fine then demand shit to get done the right way. 

Paleo Links

I really hate saying I am on a Paleo diet. I don’t think the SCD is the way to go since their use of dairy boggles the brain. I never had pouchitis but I battle small bowel bacteria overgrowth that forms in the gut so people ask what diet to follow. I bet 90% of Americans have small bowel bacteria overgrowth but don’t know it. If you are eating processed food and sugar, most likely you do have it but that colon of yours makes it easier to live with.

 

Here are some links to check out.

http://robbwolf.com/what-is-the-paleo-diet/

http://thepaleodiet.com/

recipe sites

http://paleomg.com/

http://www.thefoodee.com/

http://www.paleotable.com/

http://paleobetty.com/

Deadlifts and Polyps

So I am determined to go have my stem cell treatment for my bladder in the next 12 months. Lately my bladder is running the show, once again and I really don’t want to have another hydro done. Stem cells cost 5k and even though I am so poor due to not working I am going to make it happen. I am looking for part time work now and even full time since I just need to do this. I need to have this last thing happen to see if the harmony in my insides can work. The chronic pain of bladder and pouch related issues is just becoming too much. Tired of my bladder running the show! Someone hire me! I am a great Art Director/Creative Director with mad skills!!

Other than that I told myself I can lift heavy with this pouch and I need to try. On my good days I go to the gym, even if it is to row for 1k meters and lift a few times. It is usually bladder issues, just like the usual, that make it hard to work out. If you don’t have IC it is very hard to ever explain what the chronic pain is like. And there are good days and ok days and really really bad days. Even on good days I still have a pain level of 5. It never goes away. The flares are just sometimes better than other days.

Anyway, I was stuck at 140 pound deadlift for 6 months now. I am 9 months post op almost and I went back to the gym 2 months post op even though I didn’t lift over 30 bs for a month or 2 later that that. So lets just say 6 months. I lifted 175 pounds last week! It was awesome and I was commented on how good my form is ;-) Anyway my PR is 225 pounds and my goal is to lift 400 this year so even if I get to 300 pounds I will be happy. My hernia might not grow, it is so small I can’t even feel or see it only a CT scan picked it up so I just make sure I am always lifting with my legs.

Back on Antibiotics once again. Only way I can get my pouch to not be angry. For the first time in over 2 decades I don’t have ONE FUCKING POLYP IN ME! I know it won’t last but I can enjoy this feeling for now. It came with a price. The pain I went through after the last upper scope to burn the rest of the polyp/tumor was insanely bad and I can’t imagine keep going through upper scopes. The gas it produces and the pain my pouch has is bad. Everything hurt even my finger nails. My ribs felt like they were going to break if you touched them and my joints felt like they were going to pop. This disease sucks but I have to think one day this pain will end. This is my belief in science and stem cells.

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